Where people with MS, caregivers, and professionals get and give advice.
Sort By:
SELECT ONE
TYPES:
POPULAR TOPICS:
When your body says rest then REST
Living with Secondary-Progressive MS Age: 54 Male More than 5 years
5
Keep moving. I go to local pool and "walk" along the wall. I'm in a wheelchair but the water really helps my hips and legs.
Living with Primary-Progressive MS Age: 62 Female More than 5 years
9
QUESTION OF THE DAY:
Remembering, concentrating, finding the right word…what helps you deal with cog fog?
If you're sensitive to heat, wear loose-fitting, lightweight, breathable clothing. If you expect to be in direct sunlight, choose lighter-colored items to avoid heat ... read more
Nicole
Living with Multiple Sclerosis Age: 44 Female More than 5 years
2
Look into functional medicine and guides such as the Wahls Protocol to identify underlying causes of inflammation. I recently found out I was sensitive to some every ... read more
Stefanie Cowley
Living with Secondary-Progressive MS Age: 45 Female More than 5 years
9
I always make sure to stop what I am doing and lie down for a very brief nap. It really helps when fatigue sets in!
Living with Primary-Progressive MS Age: 77 Female More than 5 years
0
If you're having mood swings, talk to a counselor or join a support group — or both. Decreasing isolation in itself helps, and knowing you're not the only one experi ... read more
Andrea Arzt, LCSW
Healthcare provider for Multiple Sclerosis
5
I have a grabber in every room. That way, when things are too high or too low I am able to reach them safely.
Living with Relapsing-Remitting MS Age: 52 Female 1 to 5 years
2
I've become very interested in the research on effects of early life stressors on bodily health. There's a definite link. One book I find insightful is Gabor Mate's ... read more
Pamela
Living with Secondary-Progressive MS Age: 58 Female More than 5 years
5
I was diagnosed with borderline drop foot and given a brace. At first, I had so much pain in my lower leg to my foot because it was hitting a nerve. The PT made a ve ... read more
Living with Relapsing-Remitting MS Age: 61 Female
4
To manage MS and stress, try deep breathing and meditation. Also, use the 5x5 rule (if it’s not going to matter 5 years from now don’t waste 5 minutes on it). Humor ... read more
Stephanie Lynn Chaney
Living with Relapsing-Remitting MS Age: 39 Female More than 5 years
4
If you’re going to have to make a call to your insurance company, or you’re sitting down with your doctor, go in prepared with a bulleted list of generally not more ... read more
Cherie Binns, RN
Living with Relapsing-Remitting MS Age: 67 Female More than 5 years
1
Track your symptoms in relation to your diet; this will help you understand what foods make symptoms worse and what you should avoid.
Brittany Ferri, OTR/L, CCTP
Founder Simplicity of Health, LLC, Rochester, NY Healthcare provider for Multiple Sclerosis Age: 27 Female
2
I use a walker with a helping hand tool clipped to an upright position so I don't have to bend over when I drop things.
Living with Multiple Sclerosis Age: 66 Male More than 5 years
2
Fast Fact
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.
Neurology
A landmark study published in March 2019 estimates that nearly 1 million Americans have MS — 2x more than previous estimates.I use kitchen tongs as a grabbing device.
Bobbi
Living with Relapsing-Remitting MS Age: 54 Female More than 5 years
9
Build and nurture your support circle. Ask for help when you need it. Be specific with what you need and show your appreciation. Also, you can become a part of the s ... read more
Lisa Doggett, MD, MPH
Living with Relapsing-Remitting MS Age: 46 Female More than 5 years
3
Many of the problems from MS are invisible to other people such as pain, poor body temperature control, and many others.
Living with Secondary-Progressive MS
2
Poll
What’s the best thing you’ve done to manage MS at work?
Follow a healthy diet. No specific diet has been shown (yet) to reduce MS progression. You will hear about all kinds of “MS diets,” but the truth is that basic guide ... read more
Lisa Doggett, MD, MPH
Living with Relapsing-Remitting MS Age: 46 Female More than 5 years
7
Word search puzzles help with my brain fog.
Living with Relapsing-Remitting MS Age: 62 Female
3
A journal can help you keep track of your MS in between your medical visits. It's an invaluable tool in preparing for your next appointment.
Trevis
Living with Secondary-Progressive MS Age: 52 Male More than 5 years
4