Where people with ITP, healthcare professionals, and caregivers get and give advice.
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When you’re cooking or preparing food, take your time, move slowly, be aware when you have sharp utensils in your hands. Think about what sorts of things you can do ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Exercise! It helps with stress management and prompts your body to produce anti-inflammatory cytokines.
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
1
QUESTION OF THE DAY:
How do you control spontaneous bleeding? Tell us the tricks you use or items you keep on hand for ITP.
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Find a doctor who is willing to work with you to find the right treatment. Every ITP patient is different, and what works for some patients may not be ideal for you. ... read more
RareCandace
Living with ITP Age: 34 Female More than 5 years
4
Pacing myself. I make sure I do not have a lot to do in one day and try to space out my daily tasks. I think it helps to also schedule few moments to rest.
Sue
Living with ITP Age: 32 Female
1
Get all the sleep that you can! Stick to a sleep routine even if it might be a burden and disrupt aspects of your life.
Living with ITP Age: 61 Female
3
See an oncologist regularly.
Living with ITP Age: 39 Male More than 5 years
3
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>If you have frequent nosebleeds that last for more than 15 minutes you need to see an ear, nose, and throat specialist. Frequently, these nosebleeds are not from eas ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
Check blood counts often.
Living with ITP Age: 39 Male More than 5 years
4
Tell your healthcare provider about any changes in your body, like changes in bowel movements or an increase in headaches, joint pain, or fatigue. These can help us ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
We have noticed anytime our son fights an infection his platelet numbers rise really high and then significantly drop very low.
EvanJace
Care Partner for ITP Age: 30 Female
5
Lots of people with ITP take corticosteroids as part of treatment and these drugs can mess with blood sugars. Having a balanced diet that gives you all the nutrients ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
With any autoimmune disorder, including ITP, it's really important that we know all the medications and supplements you are taking. There is a hesitancy to share thi ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Inflammation can be quite damaging in the context of a wound. A lot of swelling and redness comes from inflammation, and an ice pack can slow that down or prevent it ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
2
It’s important to be a very cautious driver because a car accident is likely to be more dangerous for someone with ITP.
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>When you have an attack on your platelets, which is what ITP causes, be aware that there are activities you should avoid -- like riding motorcycles, playing rugby, a ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
1
If you suffer from frequent nosebleeds, running a humidifier and using saline (salt) nasal sprays to moisten the nasal lining can help reduce the frequency.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Poll
Does food help you manage ITP?
Be aware that some supplements, such as fish oil and curcumin (turmeric), can thin the blood; if you have ITP you may need to avoid them.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
4