Where people with ITP, healthcare professionals, and caregivers get and give advice.
Sort By:
SELECT ONE
POPULAR TOPICS:
Lots of people with ITP take corticosteroids as part of treatment and these drugs can mess with blood sugars. Having a balanced diet that gives you all the nutrients ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
If you’re constantly anxious, your immune system is not going to be working at its best. And we want the immune system to be as calm and regulated as it can be, beca ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
QUESTION OF THE DAY:
Stress, anxiety, and other emotions can go hand-in-hand with ITP. What’s your coping strategy?
Drink lots of water and meditate.
chelle
Care Partner for ITP Age: 31 Female
4
My son has chronic ITP and when his platelet numbers are under 70,000, we are very cautious about activities that he could potentially get hurt from. When that is th ... read more
EvanJace
Care Partner for ITP Age: 30 Female
4
Some of the most common signs of ITP (low platelet counts) are frequent nosebleeds that last for more than 15 minutes. If this is the case, call your doctor.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Pacing myself. I make sure I do not have a lot to do in one day and try to space out my daily tasks. I think it helps to also schedule few moments to rest.
Sue
Living with ITP Age: 32 Female
1
When you’re cooking or preparing food, take your time, move slowly, be aware when you have sharp utensils in your hands. Think about what sorts of things you can do ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
Most forms of physical activity are safe for the majority of people who have ITP. You just need to be more deliberate about how you’re participating in your sport. F ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Enjoy life and think less of your illness.
Rosel
Living with ITP Age: 18 Female More than 5 years
3
Be consistent
Paul
Healthcare provider for ITP Age: 55 Male
2
I was diagnosed with ITP at the age of 12, and since then I have been living with this rare immunity disorder. So here I am to share a few tips with the brave hearts ... read more
Ipsita
Living with ITP Age: 20 Female
2
If you're a woman living with an autoimmune disease like ITP, talk with your healthcare provider about hormone levels. If your menstrual cycles are irregular, you ma ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
If you have ITP, carry a medical alert card in your wallet that says what you have and whom to contact in case of emergency. If you're not someone who has a wallet w ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
3
Inflammation can be quite damaging in the context of a wound. A lot of swelling and redness comes from inflammation, and an ice pack can slow that down or prevent it ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
2
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Fatigue is part of ITP, especially when your platelets are low. Some days you just won't have the energy to do a lot, and that is okay!
RareCandace
Living with ITP Age: 34 Female More than 5 years
5
carry a lot of tissues.
Sue
Living with ITP Age: 33 Female
0
Poll
Does food help you manage ITP?
Meet with a registered dietitian so you have your unique dietary needs calculated and get advice for a nutritional plan that is right for your specific needs.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2