Where people with ITP, healthcare professionals, and caregivers get and give advice.
Sort By:
SELECT ONE
POPULAR TOPICS:
Many people who have bleeding disorders, including low platelet counts, don’t require any therapy. For those with low platelet counts, you should, however, make sure ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Some of the most common signs of ITP (low platelet counts) are frequent nosebleeds that last for more than 15 minutes. If this is the case, call your doctor.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
QUESTION OF THE DAY:
How do you control spontaneous bleeding? Tell us the tricks you use or items you keep on hand for ITP.
Most forms of physical activity are safe for the majority of people who have ITP. You just need to be more deliberate about how you’re participating in your sport. F ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Find a doctor who is willing to work with you to find the right treatment. Every ITP patient is different, and what works for some patients may not be ideal for you. ... read more
RareCandace
Living with ITP Age: 34 Female More than 5 years
4
Meal planning and meal prep are so important for people with ITP. I recommend “Meal Prep for Beginners” by Toby Amidor, MS, RD, CDN and my book, too, “The Anti-Infla ... read more
Ginger Hultin, MS, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
Eat a Mediterranean diet, meaning mostly fruits and vegetables and lean protein like chicken and fish. Limit the amount of pork, red meat, and processed foods you ea ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
2
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>It has been two years since my son's diagnosis and he is now considered a "chronic ITP patient." This has been a life-changing event for my son as well as for my hus ... read more
EvanJace
Care Partner for ITP Age: 30 Female
3
With any autoimmune disorder, including ITP, it's really important that we know all the medications and supplements you are taking. There is a hesitancy to share thi ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
My son has chronic ITP and when his platelet numbers are under 70,000, we are very cautious about activities that he could potentially get hurt from. When that is th ... read more
EvanJace
Care Partner for ITP Age: 30 Female
4
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
We have noticed anytime our son fights an infection his platelet numbers rise really high and then significantly drop very low.
EvanJace
Care Partner for ITP Age: 30 Female
5
Meet with a registered dietitian so you have your unique dietary needs calculated and get advice for a nutritional plan that is right for your specific needs.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
Be aware that some supplements, such as fish oil and curcumin (turmeric), can thin the blood; if you have ITP you may need to avoid them.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
4
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Be consistent
Paul
Healthcare provider for ITP Age: 55 Male
2
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
If your general practitioner has diagnosed you with a bleeding disorder and you live in a place where it’s hard to find a hematologist, you can get the care you need ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Poll
Does food help you manage ITP?
I’m a huge fan of educating yourself to really understand what’s going on. I think it makes you more susceptible to complications if you don’t have awareness of what ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
4