Where people with ITP, healthcare professionals, and caregivers get and give advice.
Sort By:
SELECT ONE
POPULAR TOPICS:
Be consistent
Paul
Healthcare provider for ITP Age: 55 Male
2
There are data that suggest your immune system is not what it should be if you don’t get enough sleep. Getting enough sleep is part of a healthy lifestyle.
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
4
QUESTION OF THE DAY:
Feeling ITP fatigue? What tips help you get through the day?
Make sure to eat on a regular schedule; no intermittent fasting! Regular, steady intake of balanced meals (think: protein, whole grain carbohydrates and unsaturated ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Age: 38 Female
4
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Get all the sleep that you can! Stick to a sleep routine even if it might be a burden and disrupt aspects of your life.
Living with ITP Age: 61 Female
3
I was diagnosed with ITP at the age of 12, and since then I have been living with this rare immunity disorder. So here I am to share a few tips with the brave hearts ... read more
Ipsita
Living with ITP Age: 20 Female
2
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>If you have ITP, carry a medical alert card in your wallet that says what you have and whom to contact in case of emergency. If you're not someone who has a wallet w ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
3
If you have frequent nosebleeds that last for more than 15 minutes you need to see an ear, nose, and throat specialist. Frequently, these nosebleeds are not from eas ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
Tell your healthcare provider about any changes in your body, like changes in bowel movements or an increase in headaches, joint pain, or fatigue. These can help us ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Meet with a registered dietitian so you have your unique dietary needs calculated and get advice for a nutritional plan that is right for your specific needs.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
ITP knocks down platelets … people who have been diagnosed with ITP always want to know how to make more platelets….but you can’t really eat more papaya (or any othe ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
5
Having a good foundation of wellness and nutrition and managing stress is essential for anyone who has an autoimmune disease like ITP because all lifestyle issues im ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
3
We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
When my patients ask, I say, not facetiously, look both ways before crossing the street. I think that is good advice whether one’s platelet count is low or normal. A ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
Exercise is essential, but you need to be very aware of the risks associated with falling or getting injured. I advise working with a physical therapist or occupatio ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>Inflammation can be quite damaging in the context of a wound. A lot of swelling and redness comes from inflammation, and an ice pack can slow that down or prevent it ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
2
Use a platelet tracker to keep track of your platelet counts.
Living with ITP Age: 45
5
Poll
Does food help you manage ITP?
If you have a child with ITP who is also a picky eater, consider meeting with a dietitian who can help with meal planning.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3