Asking for Help With MCI: How to Set Boundaries and Get What You Need

Mild Cognitive Impairment: How to Ask for Help Without Losing Your Independence

Mild Cognitive Impairment: How to Ask for Help Without Losing Your Independence
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Life with mild cognitive impairment (MCI) can bring subtle but unsettling changes. You might forget recent conversations, repeat questions, or need more time to complete tasks that once felt automatic.

Even with these changes, many people with MCI remain independent and capable of managing many, if not all, aspects of daily life for months or even years. Over time, you or your friends and family may notice some changes that are making some tasks or activities more difficult or even unsafe. While that doesn’t automatically mean your MCI has progressed, it may mean that it’s time to ask for help.

But it isn’t always an easy decision, and you may worry that reaching out signals a loss of control, or that once help starts, it won’t stop.

“But asking for help doesn’t have to be a failure or a concession. When it’s done thoughtfully, it can actually help preserve your independence and sense of self, rather than erode it,” says Victoria Shada, MD, a geriatrician at Atrium Health Wake Forest Baptist in Winston-Salem, North Carolina.

The key is learning how to ask for the right kind of help, at the right time, and in a way that keeps you in control.

Why It’s Hard to Ask for Help

One reason asking for help feels so emotionally charged is that many of the tasks affected first by MCI are deeply tied to identity, Dr. Shada says. Managing finances, driving, or taking care of household tasks aren’t just practical responsibilities — they’re part of who you are and your role in the family or household, she says.

Take driving. For many people, driving is not only a core way to maintain independence, but may also signify how they view themselves — they’re “the person who is steering the ship,” so to speak. It can be one of the most emotionally difficult areas to relinquish, Shada says.

But for people who have access to other types of transportation or who have traditionally been the passenger, giving up driving may not be especially upsetting.

Finances can be even more sensitive. For someone who has historically managed household finances, stepping back can feel like losing autonomy and control — not just over money, but across their entire life, Dr. Shada says.

Other tasks, like cooking, tend to be more hit-or-miss, emotionally. Many people aren’t especially distressed about dialing back or giving it up. “I’ve seen many people who felt a sense of relief when they decided to step away from planning and cooking meals,” says Shada.

So it’s understandable that it may feel hard to ask for help. It’s okay — and your resistance isn’t necessarily rooted in stubbornness or denial. It’s often about protecting your identity, as well as fear about what it means for the future. You may also be concerned that asking for help will make family members assume your impairment is more advanced than it is.

Decide Where Help Is Needed

A practical place to start is shifting the question from “Can I still do this?” to “Is doing this still serving my well-being?” says Shada.

People with MCI often remain capable of handling daily responsibilities, she says. But tasks that require intense concentration, multitasking, or quick judgment may become more stressful or overwhelming — even if they’re technically still doable.

Signs that some assistance could make a meaningful difference include situations where:

  • Tasks are taking much longer than they used to.
  • Certain activities, such as setting up your pillbox, leave you feeling mentally or physically drained.
  • You find yourself procrastinating on paying bills or keeping up with your health insurance because tasks feel overwhelming.
  • Mistakes have become the norm rather than a “one-off.”
  • You’ve forgotten to do things and there have been real consequences.

Occasional frustration is normal. But if frustration regularly prevents you from finishing tasks, disrupts your sleep, or begins to affect your safety or quality of life, that may be a signal that some support could help, says Shada.

Decide What Help Is Needed

In many cases, you may already recognize challenges and areas where you need assistance, but you’ve been resisting, because you think it will mean losing control, says Tulasi Goriparthi, MD, a psychiatrist with Banner Behavioral Health in Arizona.

But it isn’t necessarily true that you’ll lose control: In many cases, you may just need assistance with a specific part of a task or activity, and you can mostly continue on your own, says Dr. Goriparthi.

For example:

  • You might need help with transportation to the grocery store or library, but once there, you prefer to shop or browse on your own.
  • You may want help setting up a smart pill device, but once it’s filled, you can take your medications independently.
  • You might welcome help setting up alerts on your phone or tablet but not want a family member checking in to make sure you responded to every reminder.

A similar approach can apply to finances, says Shada.

If you notice you’re having trouble paying bills on time, ask a trusted person for financial oversight — tasks like monitoring accounts or double-checking payments can catch small mistakes early, while you still stay involved in decisions, Shada says.

“These conversations are often about giving up a little control in order to retain a lot of your independence,” she says.

Waiting too long can be far more disruptive. Missed payments can snowball into mortgage defaults or lapses in insurance coverage — situations that are much harder to recover from than smaller, earlier missteps, she says.

Being proactive in asking for help can mean that you get to set the terms; waiting too long to ask for or accept help can result in losing far more control later, says Shada.

Communicate Your Needs

Once you’ve identified which tasks you’re struggling with and some ideas about what specific tasks or steps you need help with, you’re ready to take the next step: communicating those needs to family and friends.

It helps to think about who in your circle is best suited for different kinds of support — for example, emotional support versus administrative or logistical help.

Consider where you would be comfortable talking about this, whether at your home or in a more neutral location (that may offer less privacy) like a restaurant, says Goriparthi.

Once you decide to have the first conversation, be specific about how you would like to be treated. “Try to have an open and honest discussion about boundaries of when help is welcome, and where it isn’t,” he says.

This may take repeated conversations about boundary setting, which will gradually allow you to have healthier conversations.

“Don’t try to do it all at once. Give time to the family members for these conversations to sink in. Let them process the emotions,” says Goriparthi.

Listening matters too. Family members may be worried about safety. Finding compromises — such as shared calendars, reminder systems, or location-sharing apps — can sometimes reassure loved ones while reducing the need for frequent check-ins.

“Remember, you do not have to talk about everything in the first conversation, and you don’t have to talk to everyone at once,” he says.

It’s a gradual process, says Goriparthi. “Every time you start a conversation you come closer to making your wishes fully known to that friend or family member. Remember, anything you say is not permanent, you can always change your mind as things change in the future,” he says.

Build Your Help Team

Sometimes the support you need is best provided by people outside your immediate social circle.

An occupational therapist can help identify ways to modify your environment or routines so daily tasks feel easier, even when it’s not obvious what adjustments would help most, says Goriparthi.

Financial or legal planning can also feel overwhelming. If you know there are documents you should prepare but don’t know where to start, reaching out to an existing adviser can help. The Alzheimer’s Association also offers free care consultations through its 24/7 helpline, 800-272-3900.

Support groups for people with MCI can offer something different. Family members may want to help but still struggle to understand what you’re experiencing. Talking with peers who are navigating similar challenges can provide emotional validation and practical ideas for balancing help with independence.

Outside professionals, such as therapists or social workers, can also reduce tension at home by helping clarify roles and boundaries, says Goriparthi.

For example, a marriage can be strained because the husband has MCI and the concerned wife is offering constant reminders.

“A provider can help delineate the role of a wife from the role of a caregiver and then have an honest discussion with the couple explaining the difference between caregiver and wife's role,” he says. These kinds of honest discussions can help with reducing stress in relationships and also destigmatize mild cognitive impairment, says Goriparthi.

The Takeaway

  • Mild cognitive impairment doesn’t automatically mean losing your independence, but some tasks may become more difficult or stressful over time, making targeted support helpful.
  • Asking for help is often hardest when tasks are closely tied to identity or control, but accepting limited support can help you stay involved and in control.
  • Identify specific parts of tasks that you need help with, set clear boundaries, and use tools like reminders or shared calendars to help you preserve most of your independence.
  • Conversations about help are ongoing and flexible; needs and preferences can change, and asking for support when you need it can help protect your safety, dignity, and quality of life.
EDITORIAL SOURCES
Everyday Health follows strict sourcing guidelines to ensure the accuracy of its content, outlined in our editorial policy. We use only trustworthy sources, including peer-reviewed studies, board-certified medical experts, patients with lived experience, and information from top institutions.
Resources
  1. Tips for Living Alone With Early Stage Dementia. National Institute on Aging. October 4, 2023.
David-Weisman-bio

David Weisman, MD

Medical Reviewer

David Weisman, MD, is the director of the Clinical Trial Center at Abington Neurological Associates in Pennsylvania, where he has conducted numerous clinical trials into mild cognitive impairment and Alzheimer’s disease to develop disease-modifying drugs.

Dr. Weisman has dedicated his research career toward advancing new therapies for Alzheimer’s disease, focusing on clinical trials for the prevention and treatment of Alzheimer’s disease, mild cognitive impairment, and other dementias, and he devotes his clinical practice to memory and cognitive problems.

He received a bachelor's degree in philosophy from Franklin and Marshall College, then an MD from Penn State College of Medicine. After an internship at St. Mary’s Hospital in San Francisco, he completed his neurology residency at Yale, where he served as chief resident. He then went to the University California in San Diego for fellowship training in Alzheimer’s disease and other dementias.

Weisman has published papers and studies in journals such as Neurology, JAMA NeurologyStroke, and The New England Journal of Medicine, among others.

Becky Upham, MA

Becky Upham

Author

Becky Upham has worked throughout the health and wellness world for over 25 years. She's been a race director, a team recruiter for the Leukemia and Lymphoma Society, a salesperson for a major pharmaceutical company, a blogger for Moogfest, a communications manager for Mission Health, a fitness instructor, and a health coach.

Upham majored in English at the University of North Carolina and has a master's in English writing from Hollins University.

Upham enjoys teaching cycling classes, running, reading fiction, and making playlists.