Where people with ITP, healthcare professionals, and caregivers get and give advice.
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If you have a bleeding disorder, don’t take over-the-counter medication like aspirin or NSAIDs (like Motrin) because they can inhibit platelet function and make blee ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
Open up about about ITP. Many people don't know what ITP can do to a body so it's good to speak about it. Also helps you in the future.
Sue
Living with ITP Age: 32 Female
1
QUESTION OF THE DAY:
How do you control spontaneous bleeding? Tell us the tricks you use or items you keep on hand for ITP.
Be consistent
Paul
Healthcare provider for ITP Age: 55 Male
2
Having a good foundation of wellness and nutrition and managing stress is essential for anyone who has an autoimmune disease like ITP because all lifestyle issues im ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
3
Keep over-the-counter nosebleed treatments on hand.
Living with ITP Age: 51 Female
5
Use a platelet tracker to keep track of your platelet counts.
Living with ITP Age: 45
5
See an oncologist regularly.
Living with ITP Age: 39 Male More than 5 years
3
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>Many people who have bleeding disorders, including low platelet counts, don’t require any therapy. For those with low platelet counts, you should, however, make sure ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
We have noticed anytime our son fights an infection his platelet numbers rise really high and then significantly drop very low.
EvanJace
Care Partner for ITP Age: 30 Female
5
If you’re constantly anxious, your immune system is not going to be working at its best. And we want the immune system to be as calm and regulated as it can be, beca ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
If you suffer from frequent nosebleeds, running a humidifier and using saline (salt) nasal sprays to moisten the nasal lining can help reduce the frequency.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
Stay away from risks that could lead to injury.
Living with ITP Age: 39 Male More than 5 years
3
The more varied your diet is, the better. More variety in your diet provides a healthier, more diverse microbiome, which provides a healthier immune system, and the ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
2
When you’re cooking or preparing food, take your time, move slowly, be aware when you have sharp utensils in your hands. Think about what sorts of things you can do ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
We got my son a medical alert bracelet so if anything happens paramedics will know of his condition.
EvanJace
Care Partner for ITP Age: 30 Female
5
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>If you have frequent nosebleeds that last for more than 15 minutes you need to see an ear, nose, and throat specialist. Frequently, these nosebleeds are not from eas ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
If you have a lot of stress in your life, commit to exercise and a mindfulness practice.
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Poll
Does food help you manage ITP?
Common signs of low platelet counts (ITP) are frequent nosebleeds, blood blisters in the mouth, easy “bruise-ability” (black and blue marks), and a petechial rash (t ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4