Where people with ITP, healthcare professionals, and caregivers get and give advice.
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If you've been diagnosed with ITP, talk with your healthcare provider about screening exams for H. pylori, shingles, and hepatitis C, as infections like these can tr ... read more
Wendy Ellis, ND
Seattle-based practitioner Healthcare provider for ITP Female
1
With any autoimmune disorder, including ITP, it's really important that we know all the medications and supplements you are taking. There is a hesitancy to share thi ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
QUESTION OF THE DAY:
Feeling ITP fatigue? What tips help you get through the day?
If you’re constantly anxious, your immune system is not going to be working at its best. And we want the immune system to be as calm and regulated as it can be, beca ... read more
Claudia Tellez, MD
Hematologist and oncologist at Northwestern Medicine in Chicago Healthcare provider for ITP
3
Use a platelet tracker to keep track of your platelet counts.
Living with ITP Age: 45
5
Be patient with your body! With any autoimmune disease flares can happen any time the immune system is stimulated -- even something like a flu shot can aggravate the ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
3
Exercise is essential, but you need to be very aware of the risks associated with falling or getting injured. I advise working with a physical therapist or occupatio ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
Try to plan the day in advance and have moments for rest scheduled
Sue
Care Partner for ITP Age: 32 Female
0
Fast Fact
ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S.
National Organization for Rare Disorders
<p>ITP is relatively rare, affecting an estimated 9.5 out of every 100,000 adults in the U.S. </p>If you have ITP, carry a medical alert card in your wallet that says what you have and whom to contact in case of emergency. If you're not someone who has a wallet w ... read more
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
3
Please take care of yourself -- this disorder makes you ill 🤒. I recommend an ITP DIET. Avoid processed food and choose forest-grown and field-grown food.
SYED MUZAFFAR
Care Partner for ITP Age: 23 Male
6
Lots of people with ITP take corticosteroids as part of treatment and these drugs can mess with blood sugars. Having a balanced diet that gives you all the nutrients ... read more
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
2
If you have ITP, the most important thing you can do is tell your healthcare provider about every medication you take -- including supplements and over-the-counter m ... read more
Gwen Nichols, MD
Chief Medical Officer of The Leukemia & Lymphoma Society Healthcare provider for ITP Female
4
Some of the most common signs of ITP (low platelet counts) are frequent nosebleeds that last for more than 15 minutes. If this is the case, call your doctor.
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
If you have a child with ITP who is also a picky eater, consider meeting with a dietitian who can help with meal planning.
Ginger Hultin, RD
ChampagneNutrition, Seattle; Spokesperson for the Academy of Nutrition and Dietetics Healthcare provider for ITP Female
3
Tell your healthcare provider about any changes in your body, like changes in bowel movements or an increase in headaches, joint pain, or fatigue. These can help us ... read more
Jenny Bennett, ND
Aria Integrative in Seattle; www.ariaintegrative.com Healthcare provider for ITP Female
2
Many people who have bleeding disorders, including low platelet counts, don’t require any therapy. For those with low platelet counts, you should, however, make sure ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
3
If you have frequent nosebleeds that last for more than 15 minutes you need to see an ear, nose, and throat specialist. Frequently, these nosebleeds are not from eas ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
2
Fast Fact
ITP can be chronic or acute, but adults are more likely to develop the chronic type.
National Heart, Lung, and Blood Institute
<p>ITP can be chronic or acute, but adults are more likely to develop the chronic type.</p>If your general practitioner has diagnosed you with a bleeding disorder and you live in a place where it’s hard to find a hematologist, you can get the care you need ... read more
Samuel M. Silver, MD, PhD
Castle Connolly Top Doctor; Assistant Dean for Research, Professor of Internal Medicine/Hematology-Oncology, University of Michigan Medical School Healthcare provider for ITP Male
4
There are data that suggest your immune system is not what it should be if you don’t get enough sleep. Getting enough sleep is part of a healthy lifestyle.
Terry B. Gernsheimer, MD
Hematologist and professor of medicine and hematology at UW Medicine in Seattle Healthcare provider for ITP
4
Poll
Does food help you manage ITP?
Get all the sleep that you can! Stick to a sleep routine even if it might be a burden and disrupt aspects of your life.
Living with ITP Age: 61 Female
3