
Where women with endometriosis, professionals, and caregivers get and give advice.
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Learn the basics about endometriosis. Be careful in online support groups and media articles -- in my experience, many contain gross misinformation. I lived in pain ... read more

nancynursez637
Healthcare provider for Endometriosis Age: 78 More than 5 years
1
Don’t be afraid to find a new doctor if the one you have won’t listen to you or take your pain seriously. Nancy’s Nook on Facebook has a ton of great info on the dis ... read more

Kate
Living with Endometriosis Age: 31 Female More than 5 years
5
QUESTION OF THE DAY:
If you could give one piece of endo advice to your younger self, what would it be?
Birth control pills often are only a band-aid to endometriosis symptoms. It's really important to understand excision surgery, where they cut out the affected tissue ... read more

Dr. Sallie Sarrel PT ATC DPT Healthcare provider for Endometriosis Age: 44 More than 5 years
1
Endometriosis isn't just pelvic pain. It takes more than one kind of therapy and treatment — a truly multidisciplinary team, including a physical therapist — to trea ... read more

Dr. Sallie Sarrel PT ATC DPT Living with Endometriosis Age: 44 More than 5 years
2
Find ways to release stress. I've found yoga to be a great help.

Michelle
Living with Endometriosis Age: 40 More than 5 years
1
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Michelle
Living with Endometriosis Age: 40 More than 5 years
2
Pain is an integral part of endometriosis for many women. For me, it was interesting and helpful to learn how the brain reacts to pain, and about neuroplasticity and ... read more

Meg
Living with Endometriosis Age: 35 Female More than 5 years
4
Poll
What’s your top strategy for managing endo pain?
Find the diet for YOU. Of course avoiding processed foods and inflammatory foods — sugar — is always a good idea. Eating more fruits, poultry, and vegetables may hel ... read more

Heather Guidone, Program Director, Center for Endometriosis Care, Atlanta Living with Endometriosis Age: 48 More than 5 years
1
Get information about endometriosis and be aware of any change in your body. Believe in yourself when you find something strange and share your thoughts with a relia ... read more

Living with Endometriosis Age: 28
0
My niece suffered from extreme endometriosis with accompanying cramps, etc., from the time she was a young teen. Now in her early 30s, she's happily married and empl ... read more

Care Partner for Endometriosis
0
Talk to family members -- mom, sisters, aunts, etc. -- and find out if they ever had similar symptoms. I had dramatic symptoms for years but didn't know what was cau ... read more

Kate
Living with Endometriosis Age: 32 Female 1 to 5 years
4
Diet free of meat, dairy, and fat

PMallorga
Living with Endometriosis Age: 32 Female More than 5 years
5
Don't stick with a doctor who treats this disease like it's "just" bad period pain. In my experience, general ob/gyns are not properly educated on this disease; they ... read more

Katelyn
Living with Endometriosis Age: 25 More than 5 years
3
Core-tightening workouts help. Spin class and rowing are the most targeted core workouts I’ve done.

Danielle R.
Living with Endometriosis Age: 35 Female More than 5 years
3
Go to a doctor to be checked out. Have an ultrasound too.

Care Partner for Endometriosis Age: 70 Female
6
First and foremost, check out Nancy's Nook! In my opinion, there is no use in attempting to manage symptoms before having the disease excised.

Kate M
Living with Endometriosis Age: 31 More than 5 years
2
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Endometriosis UK
1 in 10 women has endometriosis, making it almost as common as diabetes.Be persistent until you get answers.

Brandy
Living with Endometriosis Age: 37 Female More than 5 years
6
Keep fighting to be heard by doctors and family/friends.

Alexis
Care Partner for Endometriosis Age: 44 Less than 1 year
5
Find a true excision specialist. Excision is the likely the best treatment.

Danielle
Living with Endometriosis Age: 36 More than 5 years
1