
Where women with endometriosis, professionals, and caregivers get and give advice.
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CBD oil worked well on days where my pain level was less than a 5. I would mix a few drops in a small glass of water, down it, and later would feel pain relief.

Bailey
Living with Endometriosis Age: 22 More than 5 years
3
Sex should not be painful! It should not be "some pleasure sprinkled between the hurt." If you have pain with penetration, be open and direct with your doctor and lo ... read more

Sallie
Living with Endometriosis Age: 44 Female More than 5 years
4
QUESTION OF THE DAY:
What do you do to ease endo pain?
Excision surgery with a highly skilled excision specialist is the only thing that truly takes care of the disease, in my experience.

Michelle
Living with Endometriosis Age: 33 More than 5 years
2
Find out if your health insurance plan covers acupuncture. I found an acupuncturist who was willing to discount my fees if I paid out of pocket and went often.

Danielle R.
Living with Endometriosis Age: 35 Female More than 5 years
4
Commit to a health lifestyle. I've been practicing yoga for 10 years and I try to stick to a meditation schedule — I aim for three times a week — and I go to bed at ... read more

Emily
Living with Endometriosis Age: 26
1
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Find a true excision specialist. Excision is the likely the best treatment.

Danielle
Living with Endometriosis Age: 36 More than 5 years
1
If a doctor rules out endometriosis based on an ultrasound, seek another doctor.

BNK
Living with Endometriosis Age: 32 More than 5 years
6
Poll
What’s your top strategy for managing endo pain?
Keeping informed about the disease — including new treatments — is vital. While there is a lot of information available online, make sure you're accessing accredited ... read more

Dr Anne Henderson, Consultant Gynaecologist, TOTM Healthcare provider for Endometriosis
3
Epsom Salt baths with herbs and oils are a lifesaver. When I'm feeling worn out, I take a bath with organic Epsom salt and some dried marigold flowers. Dried marigol ... read more

Stephanie
Living with Endometriosis Age: 39 Female More than 5 years
2
Don't give up hope, and keep searching for the right doctor until you find one that will listen to you. Research treatment options, and dont settle for something you ... read more

Amy
Living with Endometriosis Age: 38 More than 5 years
1
Talk about it. I wasn’t diagnosed until I was 20 and it had already progressed to stage 4. Some menstrual cramps are normal but your body knows when something isn’t ... read more

Living with Endometriosis Age: 25 Female
0
Have an open and honest conversation with your partner about sex. If you have endometriosis, sex can be painful and it won't get any less painful if you ignore it. E ... read more

Brittany Ferri, MS, OTR/L, CLT
Living with Endometriosis Age: 27 Female More than 5 years
1
Find an excision specialist as early as possible. This will help avoid having up to 12 surgeries and an unnecessary hysterectomy (at age 17), which was what happened ... read more

Julie J
Living with Endometriosis Age: 28 Female More than 5 years
5
The best advice I can give is to see a doctor well-versed in endometriosis. If you see doctors who don't have enough experience, you face the possibility of repeat s ... read more

Amy
Living with Endometriosis Age: 34 More than 5 years
2
Keep talking to your doctors until they accept that your pain is real.

Living with Endometriosis Age: 31 More than 5 years
1
Some women find pain relief following a "nerve block," an injection of medication that blocks the bundle of nerves near the bottom of the spine — called the hypogast ... read more

Anita Somani, MD, OB/GYN, OhioHealth Riverside Methodist Hospital Healthcare provider for Endometriosis
2
Fast Fact
1 in 10 women has endometriosis, making it almost as common as diabetes.
Endometriosis UK
1 in 10 women has endometriosis, making it almost as common as diabetes.Dont give up, even if your pain gets dismissed at first. If you are truly in pain, make it clear to your doctor, and dont feel hesitant to be honest. My diagnosis ca ... read more

TraciK
Living with Endometriosis Age: 26 1 to 5 years
2
Stay as active as possible and strength train if you can. A strong core (not just abs -- your entire core) makes a world of difference when it comes to managing pain ... read more

Shannon
Living with Endometriosis Age: 34 1 to 5 years
1
It's easy to play down early signs as "another crampy period!" Then, you are allowing the condition to get a lot worse. So, if you have any kind of family history of ... read more

Juergen Eisermann, MD
Healthcare provider for Endometriosis
4