Life After Ulcerative Colitis Surgery: Diet, Outlook, and More

Life After Ulcerative Colitis Surgery: What to Know About Diet, Exercise, and More

Life After Ulcerative Colitis Surgery: What to Know About Diet, Exercise, and More
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Although ulcerative colitis (UC) can often be managed by taking medications and making lifestyle changes, surgery might be considered if your treatment isn’t working well enough for you, or if you develop a dangerous complication.

There are a few different types of common procedures, and your specific situation will determine which is right for you, says Dana Lukin, MD, a gastroenterologist at Weill Cornell Medicine and NewYork-Presbyterian in New York City.

But no matter which option you and your health team choose, recovery after surgery tends to be similar in terms of ongoing monitoring, lifestyle shifts like diet and physical activity, and the risk of complications. Here’s what you may experience in the weeks and months after the operation.

What to Expect After Ulcerative Colitis Surgery

The two most common surgeries for ulcerative colitis are proctocolectomy with ileal J-pouch creation (sometimes called “J-pouch” or simply “pouch” surgery) and proctocolectomy or colectomy with end ileostomy.

While both procedures involve removal of the colon (and often the rectum), they differ based on how waste is handled after surgery. With a J-pouch, an internal reservoir is created to mimic natural bowel function, while an end ileostomy utilizes an ostomy bag that’s worn externally and has to be manually emptied.

“The type of surgery performed will depend on several factors, including the presence of [co-occurring conditions], patient age, and other[s],” says Dr. Lukin. “[It] should be determined using a shared decision-making approach.”

End Ileostomy

An end ileostomy is most commonly performed on older adults, those with co-occurring health conditions, and those preferring to avoid J-pouch surgery due to the potential risk of inflammatory disorders following surgery, Lukin says.

In this procedure, the entire colon (large intestine) is removed — usually along with the rectum — and the outcome is considered a surgical cure for UC, Lukin says. Those who have an ileostomy will need to learn to manage the external pouch used to collect waste.

“The major issues will revolve around learning how to place and change the ileostomy appliance, manage ileostomy output, and care for skin around the pouch site,” he says. “In most cases, this surgery results in an excellent quality of life, and inflammatory complications are rare.”

J-Pouch Surgery

J-pouch surgery is typically done via two or three separate procedures. During the process, the colon and rectum are removed, and the tissue of the ileum (the end of the small intestine) is used to create the pouch. Then the pouch is connected to the anus.

While the steps can sometimes be done in a single surgery, multistage procedures have been shown to have more favorable outcomes, says Lukin.

“For patients undergoing [J-]pouch surgery, this results in the ability to defecate [through the anus],” he says. One of the colon’s main functions is to absorb water from waste, which solidifies fecal matter, slowing its transit down. This means bowel movements post-colon removal will be more frequent and range from liquid to solid, Lukin says.

“The typical output for [J-]pouch patients ranges from 4 to 10 [bowel] movements per day,” he says.

In the months just after the procedure, there is an adjustment to return to normal bowel function, and the frequency and consistency often improves during this time, Lukin says.

“In terms of outcome, usually [J-]pouch function is excellent, but depending on [bowel movements’] frequency, consistency, and level of urgency, this may take some adjustment, or may require the use of antidiarrheal medications, fiber supplements, or other medications to decrease output,” he says.

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Diet After Ulcerative Colitis Surgery

Immediately after UC-related surgery, you’ll be asked to increase your water intake and focus on eating easily digestible protein, says Jeremy Polman, DO, a gastroenterology fellow at Northwell Health’s Lenox Hill Hospital in New York City. Getting adequate protein is key when it comes to healing, according to research.

“The goal with diet will be to achieve normal digestive function as soon as feasible, and this may involve keeping fiber intake low during recovery from surgery,” he says. “For many, being on a liquid diet for at least a few days may be necessary.”

From there, you’ll transition to soft, bland foods, as those tend to be gentle on the digestive tract, Dr. Polman says. Over time, it’s often possible to transition to foods that are higher in fiber.

This can be made easier with the help of a registered dietitian. They can help you find foods with fiber that don’t cause symptoms like gas, bloating, and abdominal pain.

“Higher-fiber foods, sometimes called high-residue foods, may produce symptoms in the earlier part of the post-operative period, which is why they’re not recommended in the weeks right after the procedure,” says Lukin.

In the long term, most people will be able to consume a diet with few restrictions, he says. If you experience surgical complications such as strictures (narrowing of the intestines) or adhesions (scar tissue that makes the intestine stick to the abdominal wall), however, that may affect your diet.

Once you’ve healed, you may still have food triggers — the most common tend to be spicy foods, dairy, and fatty foods, Lukin says. Keeping a food diary or using a symptom-tracking app after UC surgery is helpful to identify specific foods that may be causing issues.

Exercise and Sex After Ulcerative Colitis Surgery

After your procedure, or in the case of a J-pouch, after each stage of surgery, a recovery period will be required, which means exercise will need to be limited, says Lukin.

“If there are no hernias or other physiologic issues, light activity can be resumed in the early months followed by a return to usual activities, including exercise,” he says. “In most cases, patients may return to [their] previous level of activity.”

Your doctor will advise you on when specifically to resume physical activity, based on your recovery.

Similarly, you can usually resume having sex about four to eight weeks after surgery, depending on how you feel.

“For patients with ileostomy, this may require some adjustment to the new anatomy, but there are no specific restrictions on sexual activity,” Lukin says.

You may experience temporary sexual side effects after surgery, or need to try new positions to discover what’s most comfortable. Anal sex isn’t recommended once you’ve had surgery, even if your anal canal was left intact.

Though your doctor may not explicitly bring up sex, don’t be afraid to ask questions about it — or any other aspect of your life — before you have surgery.

In general, it can take time to adjust both physically and emotionally to the changes in your body, which is why it’s important to give it time and seek out professional support when needed. Therapists and specialists such as psychosexual nurses — those who focus on the physical and psychological aspects of sexual health — often work with people after UC-related surgery.

Common Complications After Ulcerative Colitis Surgery

Just like with any surgery, there are potential short- and long-term complications after either a J-pouch or end ileostomy procedure.

For those with a J-pouch, the most common complication is pouchitis, or inflammation of the pouch’s lining. Other potential complications include:

  • Fecal incontinence or other disorders related to bowel movements
  • Strictures
  • Fistula
  • Sepsis
  • Internal leakage of fecal matter at the surgical site where the intestines were connected
  • Pouch failure
In most people, pouchitis will usually improve with antibiotics, says Lukin. However, some people may develop antibiotic-dependent or chronic antibiotic-refractory pouchitis (also known as CARP), which can require treatment with immunosuppressive therapies, he says.

Complications of an end ileostomy can include:

  • High-volume bowel movements, leading to dehydration and electrolyte imbalances
  • Skin irritation or other dermatological issues
  • Infection of the stoma (surgically created opening)
  • Stoma obstruction, retraction, or prolapse (protrusion)
  • Internal leakage of fecal matter at the surgical connection site
  • Sepsis
“There can sometimes be mechanical issues with the [external] pouch components that make it more difficult to use,” says Polman. “That can be complicated by the presence of an infection, which is why it’s important to maintain a pouch system regularly and talk with your doctor if there seems to be an issue.”

When to See a Doctor After Ulcerative Colitis Surgery

Regular checkups after either type of surgery are important to ensure that there’s no infection or other complications. You’ll likely see your doctor at least a few times within the first couple months after surgery; after that, an annual check is recommended to make sure you’re still on track with UC management, says Lukin.

However, there are some situations that require immediate medical attention, he says. Call your doctor if you experience:

  • New or worsening abdominal or pelvic pain
  • Fever that is recurring or sustained despite use of medication
  • Increase or decrease in bowel movement frequency
  • Bowel urgency
  • Blood in stool
  • Worsening diarrhea
  • Feeling of incomplete evacuation of bowels

“If you’re feeling abdominal cramping and pain that’s not controlled with pain meds, you should talk to your doctor,” says Polman. “If that’s accompanied by other issues like fever and excessive bleeding, you need to get evaluated.”

The Takeaway

  • When ulcerative colitis treatment with medications and lifestyle changes doesn’t adequately manage inflammation and other symptoms, or you have a complication, surgery to remove the colon may be an option.
  • After surgery, you’ll need to adjust your diet temporarily, and possibly in the long term as well.
  • Other lifestyle shifts may need to happen after surgery, such as adjusting your physical activity levels.

Resources We Trust

EDITORIAL SOURCES
Everyday Health follows strict sourcing guidelines to ensure the accuracy of its content, outlined in our editorial policy. We use only trustworthy sources, including peer-reviewed studies, board-certified medical experts, patients with lived experience, and information from top institutions.
Resources
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Ira Daniel Breite, MD

Medical Reviewer

Ira Daniel Breite, MD, is a board-certified internist and gastroenterologist. He is an associate professor at the Icahn School of Medicine at Mount Sinai, where he also sees patients and helps run an ambulatory surgery center.

Dr. Breite divides his time between technical procedures, reading about new topics, and helping patients with some of their most intimate problems. He finds the deepest fulfillment in the long-term relationships he develops and is thrilled when a patient with irritable bowel syndrome or inflammatory bowel disease improves on the regimen he worked with them to create.

Breite went to Albert Einstein College of Medicine for medical school, followed by a residency at NYU and Bellevue Hospital and a gastroenterology fellowship at Memorial Sloan Kettering Cancer Center. Working in city hospitals helped him become resourceful and taught him how to interact with people from different backgrounds.

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Elizabeth Millard

Author

Elizabeth Millard is a Minnesota-based freelance health writer. Her work has appeared in national outlets and medical institutions including Time, Women‘s Health, Self, Runner‘s World, Prevention, and more. She is an ACE Certified Personal Trainer and a Yoga Alliance Registered Yoga Teacher, and is trained in obesity management.